Wednesday, May 27, 2009
Rain Date
Tuesday, May 19, 2009
You ever heard of the books that say you can teach your kid sign language?
Well here's proof. He doesn't truly understand what he's saying (no difference between 'more' or 'food'). However he does know that when he gives the sign we feed him. That's pretty cool. This one is pretty cool too.
Jordan is so cute when he plays this game, but there is one problem. He can only get two parts rights before he gets confused. We taught him his head, belly, and feet. On any given day he'll remember the head and one other. This particular day was the belly.
We finally found out when the next surgery is going to be. It is a week from today, the day after memorial day. They are going to use an endoscope very similar to the last one they used, but this one will have a laser on it. There is a cyst in the middle of the vocal chords and three cysts right below them in the windpipe. The one in the vocal chords is probably restricing the volume and the other three are acting almost like a whistle. The doctor believes that all are fluid filled cysts which should be able to be excised pretty easily with the laser. As a result Jordan is definitely going to spend Tuesday night in the hospital for monitoring. That will be a good thing considering last time.
Last time Jordan was pretty fussy. He spent all day crying so much that I caved in and gave him a pacifier. It turns out that he was fussing for a reason I never predicted. After shoving the endoscope down his throat he had pretty bad gas. He calmed down after he let out a belch and filled up a pretty mean diaper. Then he took off. I miss the baby. Now, I've got a little toddler who has learned how to run and only speaks 5 words (Mommy, daddy, bye, no, and more). If he can't express himself in those words he doesn't cry. He just says bye and runs away. I can't believe there was a time when I wanted him to learn how to walk.
Tuesday, May 5, 2009
Operation Recap
I won't go into the boring details except to say that between 7:30 and the scheduled 9:30 procedure we spent about 90% of the time just waiting. We waited in 3 different roomswith play areas for the kids. I'm sure all parents do this at some point, but I think the urge is even stronger when your kid has something wrong with them. You compare kids. Mentally I tried comparing Jordan developmentally with other kids his size (Who stack blocks better? Who rocks better on the rocking horse?). I also compared behavior (That kid cries more than my kid. The other kid can count to two and my kid can't even say two). I compared size (Jordan is 10% on his height chart but not yet on the weight chart so he's always too skinny). I eventually got bored and played pac man on the video game system. The mama Ali thought I should have let some of the other kids play.
The procedure itself went off very smoothly. The doctor took one of her little video scopes down Jordan's throat to see what is causing the stridor. It turns out that Jordan has 4 cysts in there. The surgeon even showed us the photos (I won't post them). The cysts are clearly restricting the air flow in there and the surgeon said she wants to remove them. She wants to laser them out at a time yet to be determined but certainly before the end of the summer (Thanksgiving day here in FL). She also fixed his tongue which she said would have definitely been a speech impediment.
After the procedure we finally got to see Jordan after he spent 20 minutes in recovery. The recovery area we were in was pretty loud. Every pateint under the age of six was pissed off including my son. The boy hadn't eaten, was in a strange place, still felt the effects of the happy juice, sore, and had an IV in his left hand (that's pretty bad when you're left handed). We knew this going in and agreed to bend the rules for today. Jordan got all the pacifier he wanted. If fact he got more today than the rest of 2009. We even let him try Gatorade even though he's been limited to fruit juice and milk before now. It made little difference. He cried himself to sleep - I think twice. Finally at 1pm the let us out and the nurses reaction were so funny. They were making a big deal for Jordan because he got to leave the hospital. "Yay Jordan! You get to go home!" "I bet your happy to be leaving the hospital huh Jordan?" "Jordan you made it!" The nurses were making a big deal because we had been in the hospital for five and a half hours. If only they knew...
Friday, May 1, 2009
Pre Op Preview
It isn't important to know why I ended up in the box, it's just important to know that he wanted to join me in there. Sometimes a man needs to play with cardboard.
After the cardboard, all of us decided to go for a drive. The mama Ali called shotgun so guess who got to drive?